Tuesday 8 August 2006

And the winner is ....

Aren't you just staggered at times about how competitive kids can be??? DD1 was confirmed last week to have Juvenile Arthritis and Raynaud's Syndrome. Medics are currently doing blood tests to see which form of arthritis the poor lamb has ... In January of this year, DD2 had asked to be assessed for Dyslexia and we paid for her to be seen privately. She duly was identified as having:
1. Moderate to severe Dyslexia (which impacts her auditory perception rather than reading)
2. Dyspraxia (involving fine motor control ... leading to difficulties with pen grip and physically
forming words on paper. The average 13 year old is thought to produce 30 words per
minute when writing; my wee cherub musters up a grand total of 8 words)

DD2 can often misinterpret/mishear what we have said and also in the classroom. Given her history of glue ear (are we a healthy bunch or what????), the GP referred her on for hearing tests at the local hospital and she was seen today. The outcome was great: she has no physical hearing impairment but an auditory processing disorder (which ties in with the Dyslexia). On route home, she told me I was not to tell her sister that it was all part of the dyslexia umbrella as she wants to have THREE conditions, therefore beating her sister!!!

And to think we used to get rid of our competitive urges playing hopscotch, badminton, conkers .....

6 Comments:

Blogger sarah said...

Hi
Best wishes to both your daughters. My daughter has Dyslexia, Dyspraxia and auditory processing problems. She has just taken her GCSE's (most at higher level), and we are awaiting the results. In Sept she hopes to go to college to study sport, and then join the RAF. It has been hard on her, as she has not had a lot of help from school. College however have already asked her what help she thnks she might need. What a difference!
You need to push for everything you can get!!!

Wednesday, August 09, 2006  
Blogger blog-blethers said...

Fingers crossed for your daughter's forthcoming results! It's great that she is so clear about her future direction and wish her really well with it all. Absolutely agree about minimal support being made available via schools. That's been our experience too, despite the fact she was already attending the school deemed to be the specialist Dyslexia service in our area. She is deemed disadvantaged enough - despite a moderate to severe diagnosis. We have already decided that DD2 will leave school after GSCEs and move to a local college as there seems to be different funding streams and better supports available there. Fingers crossed for both our girls and thank you so much for taking time to comment. If you have any ideas about to successfully push LEAs to provide a scribe or PC for GSCEs, I'd be really grateful!

Wednesday, August 09, 2006  
Blogger Badger said...

I'm a special needs teahcer, and you have got to push the school every step of the way. You should get a scribe for GCSEs if she is managing 8 words a minute - if the school aren't helpful then contact your LEA and you can always get one of the national dyslexia support organisations to back you up.

Thursday, August 10, 2006  
Blogger blog-blethers said...

Thank you so much for the information about GSCEs, badger - really appreciate it. Isn't it sad though that people have to be prepared to take on systems, need to be articulate etc to have needs met. I am a realist and know that resources are finite and need never is ... but money seems to get squandered at times on rubbish, rather than real need (Can you tell I work in a large public organisation too - health though rather than education!). Whoops, can feel the soap box looming, and the potential about a mini rant about how monies were found left, right and centre when Prince Charles recently popped in for tea ... (lol) deep breathing and counting to 10!

Thursday, August 10, 2006  
Blogger sarah said...

Em got her results today, 2A*, 1A, 2B, 5C's (including English lang) and 1D.
We are so chuffed as she has been accepted by the local college to study B Tech National Diploma in Sport. The course is all coursework based and the support is already in place for her Dyslexia! What a change from High school.
As far as a scribe is concerned we missed having a reader or scribe by one month in the assessment(ie Emilys ability was 1 month too good for anything other than extra time)Luckily the SENCO changed during her last year at HS and the new one was much more efficient and supportive. You just need to keep pushing and get an Ed Psych report done by the school. Good luck.

Thursday, August 24, 2006  
Blogger blog-blethers said...

Sarah, you must all be so proud of Em - she has done fantastically well! Well done on her place at college too - am sure she will sail through with her courage and determination, family support and encouragement and the support from college. She has given us hope for what Cait can achieve too with the right support - please pass on our congratulations and very best wishes for her future course

Thursday, August 24, 2006  

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